Normal, Typical, Average... all words that describe children without anything medically wrong with them.Read More
Today (21/03/14) is World Down Syndrome Day.
This year's theme is
Health and Wellbeing.Read More
Sometimes I hear things in passing that I think 'actually you're wrong' but I feel like I can't correct it and find myself biting my lip to be polite because they 'mean well'...
This is mainly through misconceptions and ignorance (not nasty ignorance just general ignorance) and so until someone does say 'WELL ACTUALLY...' they will never learn and this will go round in circles.Read More
When Kyd was diagnosed with Down Syndrome at only 24hrs old, I was thrown in to a completely different world, one full of hospital appointments and health scares, statements and DLA forms. One which the ups and downs (no pun intended) would make myself, and Kyd, into the people we are today.Read More
I can not believe it is nearly February already. 2014 seems to be disappearing before my very eyes.
I have had a very busy first few weeks of the year though and I suspect this is what the theme of 2014 will be from now on.
On Thursday 16th January, Kyd underwent surgery on his bowel at the John Radcliffe Children's Hospital in Oxford.Read More
Kyd spent today preparing for his operation which is tomorrow morning.
He did all his favourite things in town, he had his favourite food at his favourite places and then made himself his third hospital bear.
So yesterday I'm celebrating an epic win. A huge success. A chance of a life time....
Today, I am miserable.
Sounds stupid doesn't it. I hear the cries of 'You ungrateful bitch' coming from a far.
I took Kyd to the John Radcliffe Hospital in Oxford this week for a long awaited appointment.
Only a week after his 11th birthday, Kyd has been told he's due to have surgery on his bowel in a couple of months time. He's having an ACE tube fitted. It is quite a complicated operation but it will stop the pain he has daily because of his lazy bowel and constipation. Eventually the bowel may heal itself and he can have a normal, healthy, active adulthood... HURRAH... it may not though and he may end up with a bag for life... and that isn't a shopping one.
The moment that you fall pregnant you have a dream.
You dream of what and who your little bean will grow into.
As that little bean grows, so do your hopes and your dreams as well as the question mark over what that little bean will be like as a big bean.
Are you serious?
I thought Bifocals were for old people. I hadn't really thought about it though to be honest but I'd never seen them on a child.Read More
Contrary to popular belief, not all parents of children who have Down Syndrome are Anti Testing during pregnancy. Although some are, others see things in a different way but we seem to not shout quite as loud as the others and I can't work out why?Read More
One fine day in the middle of the night 2 dead men got up to.... cough their guts up!
When I say 2, I mean 1, and when I say 1, I mean Kyd!!
So Kyd turned 10 last week and as amazing as that is, his birthdays also have an alternative meaning....
The start of the season of Snizzles, Snorts and Snot Rags!!
We started off February 2012 with a lovely meal out for my birthday, we ended it in hospital.Read More
Tonight I realised just how much Kyd really does take in and it really made me think about a lot of things that have happened in the past.Read More
Bloody Hospital Trips!
I have spent a few days contemplating my reaction to my resent trip to the hospital and I have decided... I'm a little bit Annoyed and a lot bit f**ked off!!