16 years - No looking back
7 honest and easy ways to parent an older child with Down Syndrome
It’s funny, I haven’t blogged for ages but this morning when I woke up the owner of a brand new 16 year old, my first thought was “write it down Alice”.
I don’t really know what I feel about this milestone, I seem to have a knot in my stomach and a tear in my eye, but I am not sure whether I’m sad, proud, happy, massively freaked out or
Kyd Does Breakfast...
'Wooooahhhh there, stop growing up' I keep saying to Kyd as he does more and more independently but really, this is what the last 12 years of hard graft have been building up to. This is what he needs to be doing to build up to real life and this whole growing up thing is 12 years in the making.
It Just Takes Them A Little Bit Longer
Kyd's independence training is well under way after proving he can make his own breakfast this morning...
My Baby Has Pubic Hair... *dies a little inside*
I often get asked 'When will he...?' there is no answer to that question, Kyd works at his own pace and so do all kids especially those with Down Syndrome, it is what it is.
Goodbye to Hearing Aids, Glue Ear and ENT
OK lets talk about the fact that Kyd has hit Puberty....
*grabs a large glass of gin*
How the hell do you deal with that???
I knew it was coming, it was inevitable and that in the case of a child with Down Syndrome, they can hit that stage running and early... as young as 10 or 11...
Pride and Prejudice (SEN Schools)
When Kyd was diagnosed with Down Syndrome at only 24hrs old, I was thrown in to a completely different world, one full of hospital appointments and health scares, statements and DLA forms. One which the ups and downs (no pun intended) would make myself, and Kyd, into the people we are today.
#LDWeek13 - Our Superhero, Our Kyd
Noooo I'm not reviewing the book, although I do love a bit of Mr Darcy.
Today was parents evening... should I say 'this evening was parents evening'... *shrugs* either way.
Kyd, Champion of Thorpe Park!
Learning disabilities come in all shapes and sizes and some aren't seen as 'serious' or 'real' in some people's eyes, which is a real shame in this day and age.... this week celebrates all of the people who deal or cope with, teach, diagnose, help and understand all the different types of learning disabilities, whether it be helping a child/adult with them or showing faith and confidence in yourself to achieve all that you can whilst having them... you are all superheroes to me.
Disciplining my child with Down Syndrome
Hi I'm Kyd and I am 10.5 years old.
I have Down Syndrome.
And I went on more rides than my scared adult cousins when I went to Thorpe Park for the first time this week.... because I AM EPIC!
Down Syndrome Behavioural Changes age 8-12: 'NO, MAKE ME!' are you serious you're 9??
Do not underestimate my child’s understanding of right and wrong!
Over the past 10 years I have read up on, listened to and watched others, to find the best way to bring up Kyd as a child with Down Syndrome but also as a child in general. What I have learnt is that actually there is no difference just a few extra hurdles for those with disabilities.
So after thinking he was doing really well with all the change in his life and patting myself on the back for doing a great job in the transition so far, this week came a spat of behaviour issues with Kyd that we haven't seen in a long time.... or ever in some cases.