16 years - No looking back
Don't Worry, Be Happy...
It’s funny, I haven’t blogged for ages but this morning when I woke up the owner of a brand new 16 year old, my first thought was “write it down Alice”.
I don’t really know what I feel about this milestone, I seem to have a knot in my stomach and a tear in my eye, but I am not sure whether I’m sad, proud, happy, massively freaked out or
What IS a typically average normal child anyway?
Don't lie, you so sung that title then didn't you?! If not, why not? You uncultured swines... just kidding.
7 honest and easy ways to parent an older child with Down Syndrome
Normal, Typical, Average... all words that describe children without anything medically wrong with them.
Dear 16 year old me - Thank You Letter to the people of the internet... #WDSD15
'Wooooahhhh there, stop growing up' I keep saying to Kyd as he does more and more independently but really, this is what the last 12 years of hard graft have been building up to. This is what he needs to be doing to build up to real life and this whole growing up thing is 12 years in the making.
My opinion on The Daily Fail and Loose Women story.... I wish I'd aborted my Son with Down Syndrome
Dear People of the tinternet... I posted this video
Inside Door 21
I watched Loose Women, I read the original article in the Daily Fail and I even kept up to date on the vast amount of comments it seems to have created, I found it all very sad.
I couldn't cope in your shoes...
Sometimes in life you take a chance and walk through the door at the end of a route you wouldn’t usually take. When it closes behind you, you realise it’s leading you to a place that you weren’t expecting, one that you’d never even dreamed of before…. a place in which, once there, your life will never be the same again.
World Down Syndrome Day 2014 - Health and Wellbeing #lotsofsocks
The moment you find out you’re pregnant,
Is the moment that the unconditional love for that child begins.
The moment you receive a diagnosis,
Myths and Misconceptions of a child with Down Syndrome
Today (21/03/14) is World Down Syndrome Day.
This year's theme is
Health and Wellbeing.
The Magic of The FA Cup
Sometimes I hear things in passing that I think 'actually you're wrong' but I feel like I can't correct it and find myself biting my lip to be polite because they 'mean well'...
This is mainly through misconceptions and ignorance (not nasty ignorance just general ignorance) and so until someone does say 'WELL ACTUALLY...' they will never learn and this will go round in circles.
Seeing The World Through Your Kids Eyes
When Kyd was in hospital he missed a whopper of a football game a 7-1 win for Reading at home to Bolton. Kyd has had a season ticket for 7 years now and he has NEVER seen a game like that. He has seen 6 goals and begged for 7 but he's never seen a game where he's been chanting 'We want 8, We want 8'. Alas due to having surgery on the Thursday he could not attend this game and he felt cheated, like he'd hit the beans on toast in a 0-0 tie against Man Utd at the 90th minute... cheated.
Pride and Prejudice (SEN Schools)
Seeing the world through your kids eyes
We see small things,
They see big things.
I can't go back to yesterday, I was a different person then...
Noooo I'm not reviewing the book, although I do love a bit of Mr Darcy.
Today was parents evening... should I say 'this evening was parents evening'... *shrugs* either way.
There is always someone, somewhere, worse off than you....
Yesterday, as I walked into the children's clinic, as I've done so many times before, I suddenly had an overwhelming feeling of emotion. I can't quite pin point that emotion, it was both happy and sad and as tears filled my eyes, I felt this huge smile growing upon my face.
#LDWeek13 - Our Superhero, Our Kyd
I took Kyd to the John Radcliffe Hospital in Oxford this week for a long awaited appointment.
Only a week after his 11th birthday, Kyd has been told he's due to have surgery on his bowel in a couple of months time. He's having an ACE tube fitted. It is quite a complicated operation but it will stop the pain he has daily because of his lazy bowel and constipation. Eventually the bowel may heal itself and he can have a normal, healthy, active adulthood... HURRAH... it may not though and he may end up with a bag for life... and that isn't a shopping one.
Don't dismiss the guilty feeling inside
Learning disabilities come in all shapes and sizes and some aren't seen as 'serious' or 'real' in some people's eyes, which is a real shame in this day and age.... this week celebrates all of the people who deal or cope with, teach, diagnose, help and understand all the different types of learning disabilities, whether it be helping a child/adult with them or showing faith and confidence in yourself to achieve all that you can whilst having them... you are all superheroes to me.
Kyd, Champion of Thorpe Park!
The moment that you fall pregnant you have a dream.
You dream of what and who your little bean will grow into.
As that little bean grows, so do your hopes and your dreams as well as the question mark over what that little bean will be like as a big bean.
Disciplining my child with Down Syndrome
Hi I'm Kyd and I am 10.5 years old.
I have Down Syndrome.
And I went on more rides than my scared adult cousins when I went to Thorpe Park for the first time this week.... because I AM EPIC!
Including Children With Down Syndrome In Mainstream Schools
Do not underestimate my child’s understanding of right and wrong!
Over the past 10 years I have read up on, listened to and watched others, to find the best way to bring up Kyd as a child with Down Syndrome but also as a child in general. What I have learnt is that actually there is no difference just a few extra hurdles for those with disabilities.
Today on Twitter @Jigsawcare & @earlyyearscpd made me aware of an article in the Telegraph. As it is Down Syndrome Awareness month this month I thought I'd share my two pence worth about my experiences with mainstream schools.