Down Syndrome

Posts in Awareness
16 years - No looking back

It’s funny, I haven’t blogged for ages but this morning when I woke up the owner of a brand new 16 year old, my first thought was “write it down Alice”.

I don’t really know what I feel about this milestone, I seem to have a knot in my stomach and a tear in my eye, but I am not sure whether I’m sad, proud, happy, massively freaked out or

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Myths and Misconceptions of a child with Down Syndrome

Sometimes I hear things in passing that I think 'actually you're wrong' but I feel like I can't correct it and find myself biting my lip to be polite because they 'mean well'...

This is mainly through misconceptions and ignorance (not nasty ignorance just general ignorance) and so until someone does say 'WELL ACTUALLY...' they will never learn and this will go round in circles.

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The Magic of The FA Cup

When Kyd was in hospital he missed a whopper of a football game a 7-1 win for Reading at home to Bolton. Kyd has had a season ticket for 7 years now and he has NEVER seen a game like that. He has seen 6 goals and begged for 7 but he's never seen a game where he's been chanting 'We want 8, We want 8'. Alas due to having surgery on the Thursday he could not attend this game and he felt cheated, like he'd hit the beans on toast in a 0-0 tie against Man Utd at the 90th minute... cheated.

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There is always someone, somewhere, worse off than you....

I took Kyd to the John Radcliffe Hospital in Oxford this week for a long awaited appointment.

Only a week after his 11th birthday, Kyd has been told he's due to have surgery on his bowel in a couple of months time. He's having an ACE tube fitted. It is quite a complicated operation but it will stop the pain he has daily because of his lazy bowel and constipation. Eventually the bowel may heal itself and he can have a normal, healthy, active adulthood... HURRAH... it may not though and he may end up with a bag for life... and that isn't a shopping one.

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#LDWeek13 - Our Superhero, Our Kyd

Learning disabilities come in all shapes and sizes and some aren't seen as 'serious' or 'real' in some people's eyes, which is a real shame in this day and age.... this week celebrates all of the people who deal or cope with, teach, diagnose, help and understand all the different types of learning disabilities, whether it be helping a child/adult with them or showing faith and confidence in yourself to achieve all that you can whilst having them... you are all superheroes to me.

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Disciplining my child with Down Syndrome

Do not underestimate my child’s understanding of right and wrong! 

Over the past 10 years I have read up on, listened to and watched others, to find the best way to bring up Kyd as a child with Down Syndrome but also as a child in general. What I have learnt is that actually there is no difference just a few extra hurdles for those with disabilities.

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