Don't lie, you so sung that title then didn't you?! If not, why not? You uncultured swines... just kidding.Read More
Normal, Typical, Average... all words that describe children without anything medically wrong with them.Read More
Are you the only person in the house who knows what is going on and when, when it comes to your child's medical appointments and medication diary? Because many families I know have one main carer who knows everything and one who knows just enough to help out when needed, so what would happen if that carer was out of action for a while? It is quite a normal situation, so I'm told, and I'm pretty sure nobody else would know Who, What, When, or Where, when it comes to the medical wonderland that is the world of Kyd & Down Syndrome.
'Wooooahhhh there, stop growing up' I keep saying to Kyd as he does more and more independently but really, this is what the last 12 years of hard graft have been building up to. This is what he needs to be doing to build up to real life and this whole growing up thing is 12 years in the making.Read More
Kyd's independence training is well under way after proving he can make his own breakfast this morning...Read More
Dear People of the tinternet... I posted this videoRead More
I watched Loose Women, I read the original article in the Daily Fail and I even kept up to date on the vast amount of comments it seems to have created, I found it all very sad.Read More
I often get asked 'When will he...?' there is no answer to that question, Kyd works at his own pace and so do all kids especially those with Down Syndrome, it is what it is.Read More
Sometimes in life you take a chance and walk through the door at the end of a route you wouldn’t usually take. When it closes behind you, you realise it’s leading you to a place that you weren’t expecting, one that you’d never even dreamed of before…. a place in which, once there, your life will never be the same again.Read More
OK lets talk about the fact that Kyd has hit Puberty....
*grabs a large glass of gin*
How the hell do you deal with that???
I knew it was coming, it was inevitable and that in the case of a child with Down Syndrome, they can hit that stage running and early... as young as 10 or 11...Read More
The moment you find out you’re pregnant,
Is the moment that the unconditional love for that child begins.
The moment you receive a diagnosis,Read More
Today (21/03/14) is World Down Syndrome Day.
This year's theme is
Health and Wellbeing.Read More
Sometimes I hear things in passing that I think 'actually you're wrong' but I feel like I can't correct it and find myself biting my lip to be polite because they 'mean well'...
This is mainly through misconceptions and ignorance (not nasty ignorance just general ignorance) and so until someone does say 'WELL ACTUALLY...' they will never learn and this will go round in circles.Read More
When Kyd was diagnosed with Down Syndrome at only 24hrs old, I was thrown in to a completely different world, one full of hospital appointments and health scares, statements and DLA forms. One which the ups and downs (no pun intended) would make myself, and Kyd, into the people we are today.Read More
When Kyd was in hospital he missed a whopper of a football game a 7-1 win for Reading at home to Bolton. Kyd has had a season ticket for 7 years now and he has NEVER seen a game like that. He has seen 6 goals and begged for 7 but he's never seen a game where he's been chanting 'We want 8, We want 8'. Alas due to having surgery on the Thursday he could not attend this game and he felt cheated, like he'd hit the beans on toast in a 0-0 tie against Man Utd at the 90th minute... cheated.Read More
I can not believe it is nearly February already. 2014 seems to be disappearing before my very eyes.
I have had a very busy first few weeks of the year though and I suspect this is what the theme of 2014 will be from now on.
On Thursday 16th January, Kyd underwent surgery on his bowel at the John Radcliffe Children's Hospital in Oxford.Read More
Kyd spent today preparing for his operation which is tomorrow morning.
He did all his favourite things in town, he had his favourite food at his favourite places and then made himself his third hospital bear.
So yesterday I'm celebrating an epic win. A huge success. A chance of a life time....
Today, I am miserable.
Sounds stupid doesn't it. I hear the cries of 'You ungrateful bitch' coming from a far.
Seeing the world through your kids eyes
We see small things,
They see big things.